Hello All. Im sorry I have been MIA for a while. I whole heartily wanted to update more often. But getting a job with bakers hours mean I get nothing else done! Im still struggling. I have some ok days, and tons of bad days. Over the past few months I have noticed a spike in my symptoms before I get my period. The first two months my period came like clock work, then my third came 22 days late. Im now awaiting my fourth one, which is at this time 6 days late. I can honestly say I have been scared into thinking Im pregnant! But back to those always present symptoms. Im still suffering from tingling, numbness, vibrating sensation, dry mouth, migraines, hand pain, stomach aches and bloating, sore throat, hoarse voice, painful joints, irritability, anxiety, depression, lack of motivation, feeling of detachment, fatigue, ache(which is worse before my period-all over my face, neck, chest, and arms),constant itch, visual floaters, foggy brain, twitching, insomnia, and the deep bone pain in my lower back. The last couple of days have been hard on me because of my back pain. I can hardly walk, roll over, or bend down to pick something up. Again I feel like Im 80. And having a bakers job make it really hard to get through my shift.
There are a few things I have been trying out to see if I have any progress. The first is I 100% have changed my diet to gluten free. Exciting right? Every time I eat even the smallest amount of gluten I have stomach cramps that cause me to lay in a fettle position for hours, bloating, migraine, throat that feels like I have strep, and joint pain-really bad in my right hand,. I've come to the conclusion that no amount of gluten is worth all of this. The second thing is that I am trying out those skinny wraps to help pull out the toxins in my fat cells. I have had two treatments. I haven't felt much of a difference except that Jose thinks my increase in back pain seems like it could be from the toxins on that area are brought forth. Hopefully after my third treatment I can see a difference. I know of a few ladies who have chronic pain that have used the skinny wraps made their pain and fatigue 85% better. So Im still holding on hope! The third thing Im trying is that Im trying to cure my acne by using olive oil. Yes I know that sounds crazy, but a lady in my support group has been using it and says she saw a huge difference in a week! And since Im so embarrassed by my nasty acne Im willing to give anything a try. Lol. Well Im sorry it's not a cheerful update. Im starting to feel as though I will be suffering from the effects of the mirena the rest of my life.
Im glad I finally made an update. Since Im stuck lying here in bed I figured what better to do to pass this time. Hope all you are doing better than I am. I pray for all of you sufferers constantly.
Showing posts with label Mirena side effects. Show all posts
Showing posts with label Mirena side effects. Show all posts
Sunday, April 28, 2013
Monday, January 21, 2013
Faith
I'm in this really amazing bible study group. Our lesson a few weeks ago got me thinking about my situation with the mirena. In lecture one of the things said was "what if God uses this situation to grow your faith."
I started off by thinking about the iud robbing me of my marriage, my children's childhood and myself for the past ten years. There have been times that I have believed that I was going to die. That my children were going to be left without a mother. That I would be missing out on them growing up, there first dates, graduating from high school, starting a career, starting a family of their own. There have also been times that I questioned my sanity, that I believed the doctors when they said I'm fine.
But I can say there is one thing that the mirena has not robbed from me and that is my faith. With the passing of each year I have clung tight to my God. I have spent many hours awake talking with God, praying to Him and praising Him for all my blessings. I have a hunger to be as close to God as possible, and my hunger to learn more of His word has continued to grow. To the point that I can't get enough. Throwing myself in several studies at one time. It's because of this that I know God has stood next to me, holding my hand, feeling every ounce of pain I have endured. At the worst of my illness He has physically picked me up and encouraged me to take steps forward. Even if they are small ones.
God's love has never failed me. And I know that He will continue to stand by my side during my healing. That He will use me and my story to save others from this heartache. He will help me move this mountain. To those of you who are currently experiencing what I have remember this, "The Lord will fight for you; you only need to be still." Exodus 14:14. Stand firm and see the deliverance The Lord will bring, don't give into despair. You will get through this!
I started off by thinking about the iud robbing me of my marriage, my children's childhood and myself for the past ten years. There have been times that I have believed that I was going to die. That my children were going to be left without a mother. That I would be missing out on them growing up, there first dates, graduating from high school, starting a career, starting a family of their own. There have also been times that I questioned my sanity, that I believed the doctors when they said I'm fine.
But I can say there is one thing that the mirena has not robbed from me and that is my faith. With the passing of each year I have clung tight to my God. I have spent many hours awake talking with God, praying to Him and praising Him for all my blessings. I have a hunger to be as close to God as possible, and my hunger to learn more of His word has continued to grow. To the point that I can't get enough. Throwing myself in several studies at one time. It's because of this that I know God has stood next to me, holding my hand, feeling every ounce of pain I have endured. At the worst of my illness He has physically picked me up and encouraged me to take steps forward. Even if they are small ones.
God's love has never failed me. And I know that He will continue to stand by my side during my healing. That He will use me and my story to save others from this heartache. He will help me move this mountain. To those of you who are currently experiencing what I have remember this, "The Lord will fight for you; you only need to be still." Exodus 14:14. Stand firm and see the deliverance The Lord will bring, don't give into despair. You will get through this!
Wednesday, December 26, 2012
Waking in pain
I guess you know it's going to be a bad day of pain when you are dreaming, and in that dream you are not able to get out of bed. You pull yourself up with tons of effort. Climb out of bed and find you can hardly walk, you need crotches to help you take even a few steps. Then I wake up to find my dream isn't just a dream, it reality. I can't tell you how many times I have had this happen to me. So many I have lost count. What I can tell you is that it doesn't get easier. Each time it's still the same effort. The same amount of pain. Im lying on my back and I can feel the pain in my hip and lower back, even before I'm awake. I sleep on the very edge of my bed. I can barley reach my arm over to the side of the mattress. I have to use both arms to pull my self over to my right side. It then takes ALL of my energy and mind power to swing my legs over the side of my bed and then onto the ground. This has been only a small part of the nightmare I have been living the past ten years. My biggest fear is that I will never have my life completely back. I'm afraid that the poison has taken on a life of its own. I pray that the mirena will be taken of the market soon. No one should have to live this way. For those of you woman who are going through the same thing, and reading my blog for the very first time, know this....you are not alone, and no matter what anyone tells you it's not in your head. You are not going crazy. You and ONLY you know how your body should feel. And this is not normal. Keep fighting, keep faith and don't give up. And if your browsing sites and just happened to end up here on my blog, and you have the mirena, get that thing out know. That is the first step towards our healing. And if you have any questions I will help in the best way I can.
Tuesday, December 18, 2012
Blood test clotted
Well, my blood test I did last week clotted before it made it all the way to Pennsylvania for testing. So that means I have to do the test again. The good thing is that they are making a special test tube specifically for me(since I have factor 2/blood clotting disorder), the bad thing is it will take a week or two before it gets here. Then another week and half before it gets to them and tested. I'm so frustrated at myself. I should have mentioned my disorder to begin with. But I've taken a million blood tests over the past ten years and never had this happen before. But then again my tests have been done here in New Mexico. Since I had my mirena taken out last Thursday it will be out about two weeks when I do the test again. I have no doubt I will still have silicone in my system, but not as high with it in. I really wanted to have that information recorded for legal reasons. Praying that things will work out in my favor. Also worried about the cost, I was told it could be more since they have to make something special for me. Paying out of pocket is a little hard right now, but I know how important the test will be. I'll keep you updated when I have new information.
To top it all off I have been stuck in bed the last several hours. My stomach hurts so badly, and I'm so bloated I look at least seven months pregnant! My lower back and down my right leg is very achy today. I hope for a day when I can say all these things are behind me, but for now I continue to suffer in silence . Late last I also suffered a panic attack. I think I heard my husband come home(he gets home about midnight) and I woke up very frightened, my heart felt as though it would jump out my chest. Took my several minutes to realize where I was. I have had this happen before, waking up in a panic is terrifying. I'm looking forward to doing my detox, but have to hold off until the test is run!
To top it all off I have been stuck in bed the last several hours. My stomach hurts so badly, and I'm so bloated I look at least seven months pregnant! My lower back and down my right leg is very achy today. I hope for a day when I can say all these things are behind me, but for now I continue to suffer in silence . Late last I also suffered a panic attack. I think I heard my husband come home(he gets home about midnight) and I woke up very frightened, my heart felt as though it would jump out my chest. Took my several minutes to realize where I was. I have had this happen before, waking up in a panic is terrifying. I'm looking forward to doing my detox, but have to hold off until the test is run!
Saturday, December 8, 2012
More proof
http://www.lightparty.com/Health/SiliconePoison.ht
Here is another article on silicon poisoning. This article is talking about breast implants, but remeber silicone is what mirena is made of as well. Please try and read it all. there is a ton of information.
To me the thing that stood out the most, probably because since I was little I had issue's with cockroaches, I am terrified of them. I know this is a stupid fear, especially with all that I am going through now. Was this statement...."Silicone is a biologically active and toxicsubstance.
The basic gel implant fillerñDC 360 silicone fluidñwas once considered worth following upfor development by Dow Corning scientists as a potent insecticide, one of the few known substances capable of killing cockroaches."
Wow. Really? And yet there are people willingly allowing this substance to be put into our bodies. Under the notion that it is the BEST thing ever. How is that? Can anyone explain that to me. Can I say that ever day my hatred towards bayer and the mirena is increasing? How in the world have I gotten myself into this? Please ladies, do your research. If you were thinking that mirena is the birth control for you....please don't get it. And if you have the mirena, take it from someone who has suffered most of her adult life with all of these mirena side effects, ITS NOT WORTH IT. Get that thing out of you as soon as possible.
Now is here is a video about mirena and autoimmune disorders, and what our bodies are going through having this mirena in us. http://www.youtube.com/watch?v=kJftLXBuWYM
Again ladies.....please, please, stay away from this horrible birth control. The doctor's are lying to you. It's not going to make your busy life easier. It is going to make it a living hell. Even woman who had no side effects for the whole five years with it, are having problem's after it is removed. I think video pretty much explains why.
Last link for today I promise. Here is a petition to the US food and drug administration. In this paragraph they are stating the symptom's patients are told about, then the symptom's the doctors know about that most our chossing to tell us about, and lastly the symptom's that are not being recorded. http://www.change.org/petitions/bayer-tell-women-the-truth-about-mirena-iud-birth-control?utm_campaign=share_button_action_box&utm_medium=facebook&utm_source=share_petition&utm_term=35649128
"The patient information for the device contains warnings for the following side effects ONLY:
Pelvic Inflammatory Disease, infection, embedment, perforation, discomfort during placement, expulsion, missed menstrual periods, changes in bleeding, ovarian cysts.
This is the only "adverse reaction" information the patient will typically receive.
The following adverse reactions appear ONLY on the physician information for the Mirena (perthe official physician information):
abdominal/pelvic pain, vaginal discharge, nausea, headache, nervousness, vulvovaginitis, dysmerorrhea (cramps), back pain, weight increase, breast pain/tenderness, acne, decreased libido, depressed mood, cervicitis (vaginal infection), hypertension, migraine, vomiting, anemia, dyspareunia (painful intercourse), alopecia (hair loss), eczema, pruritus (itchiness), rash, urticaria (hives), abdominal distension, altered mood, hirsutism (abnormal hair growth), edema (swelling).
Although doctors are instructed to share this information with the patient, they often do not. In many cases, even when specifically asked, doctors are denying a possible link between Mirena and these symptoms. Patients are consistently told there are "no side effects," and that the synthetic hormone (levonorgestrel) contained in the mirena cannot be harmful because the hormone release is localized to the uterus.
In addition, Mirena users are reporting additional common side effects that are not documented in any of the Mirena information provided by the manufacturer.
These include, but are not limited to:
anxiety, mental fog, double-vision, tinnitus, appetite increase, constipation, flatulence, polyuria (frequent urination),chest pain/heart palpitations, shortness of breath, bronchitis, fatigue/drowsiness, fainting, loss of nerve sensation/tingling in extremities, tremor, weight loss, insomnia, cold intolerance, thyroid dysfunction, nonpuerperal lactation."
Please for me....sign this petition. I can't just sit around doing nothing about this. I cant bare the thought of even one more woman to be put into this hell. I wouldn't wish the pain I have been through on my worst enemy.
Here is another article on silicon poisoning. This article is talking about breast implants, but remeber silicone is what mirena is made of as well. Please try and read it all. there is a ton of information.
To me the thing that stood out the most, probably because since I was little I had issue's with cockroaches, I am terrified of them. I know this is a stupid fear, especially with all that I am going through now. Was this statement...."Silicone is a biologically active and toxicsubstance.
The basic gel implant fillerñDC 360 silicone fluidñwas once considered worth following upfor development by Dow Corning scientists as a potent insecticide, one of the few known substances capable of killing cockroaches."
Wow. Really? And yet there are people willingly allowing this substance to be put into our bodies. Under the notion that it is the BEST thing ever. How is that? Can anyone explain that to me. Can I say that ever day my hatred towards bayer and the mirena is increasing? How in the world have I gotten myself into this? Please ladies, do your research. If you were thinking that mirena is the birth control for you....please don't get it. And if you have the mirena, take it from someone who has suffered most of her adult life with all of these mirena side effects, ITS NOT WORTH IT. Get that thing out of you as soon as possible.
Now is here is a video about mirena and autoimmune disorders, and what our bodies are going through having this mirena in us. http://www.youtube.com/watch?v=kJftLXBuWYM
Again ladies.....please, please, stay away from this horrible birth control. The doctor's are lying to you. It's not going to make your busy life easier. It is going to make it a living hell. Even woman who had no side effects for the whole five years with it, are having problem's after it is removed. I think video pretty much explains why.
Last link for today I promise. Here is a petition to the US food and drug administration. In this paragraph they are stating the symptom's patients are told about, then the symptom's the doctors know about that most our chossing to tell us about, and lastly the symptom's that are not being recorded. http://www.change.org/petitions/bayer-tell-women-the-truth-about-mirena-iud-birth-control?utm_campaign=share_button_action_box&utm_medium=facebook&utm_source=share_petition&utm_term=35649128
"The patient information for the device contains warnings for the following side effects ONLY:
Pelvic Inflammatory Disease, infection, embedment, perforation, discomfort during placement, expulsion, missed menstrual periods, changes in bleeding, ovarian cysts.
This is the only "adverse reaction" information the patient will typically receive.
The following adverse reactions appear ONLY on the physician information for the Mirena (perthe official physician information):
abdominal/pelvic pain, vaginal discharge, nausea, headache, nervousness, vulvovaginitis, dysmerorrhea (cramps), back pain, weight increase, breast pain/tenderness, acne, decreased libido, depressed mood, cervicitis (vaginal infection), hypertension, migraine, vomiting, anemia, dyspareunia (painful intercourse), alopecia (hair loss), eczema, pruritus (itchiness), rash, urticaria (hives), abdominal distension, altered mood, hirsutism (abnormal hair growth), edema (swelling).
Although doctors are instructed to share this information with the patient, they often do not. In many cases, even when specifically asked, doctors are denying a possible link between Mirena and these symptoms. Patients are consistently told there are "no side effects," and that the synthetic hormone (levonorgestrel) contained in the mirena cannot be harmful because the hormone release is localized to the uterus.
In addition, Mirena users are reporting additional common side effects that are not documented in any of the Mirena information provided by the manufacturer.
These include, but are not limited to:
anxiety, mental fog, double-vision, tinnitus, appetite increase, constipation, flatulence, polyuria (frequent urination),chest pain/heart palpitations, shortness of breath, bronchitis, fatigue/drowsiness, fainting, loss of nerve sensation/tingling in extremities, tremor, weight loss, insomnia, cold intolerance, thyroid dysfunction, nonpuerperal lactation."
Please for me....sign this petition. I can't just sit around doing nothing about this. I cant bare the thought of even one more woman to be put into this hell. I wouldn't wish the pain I have been through on my worst enemy.
Thursday, December 6, 2012
Mirena and Norplant
I am so pissed! How can the makers of Mirena be so irresponsible. Knowingly implant the same medication into million's of woman that was banned from the US because of all the significant side effects and even DEATH! I thought that doctor's and pharmaceutical companies were here to help people. Not be the reason that I have been so sick the last 10 years.
Do you know what it's like to write letter's to your loved ones because you think your dying, and hope that they find where you have hidden them once your gone? Or to have many day's where you physically couldn't get out of bed. Where you couldn't care for your children? Not being able to help them get ready, brush there hair, feed them, or be the loving nurturing mother God made you to be? If I was your wife, sister, daughter and you had to stand by watching my body slowly shut down, then would you take this thing off the market! These are some of my questions I would like to ask the makers of mirena.
I will forever carry the guilt of not being a good mom around with me for the rest of my life. There are no words I can say to my kids to make up for lost time, and that I'm so sorry they had to grow up way to early. Luckily I have a beautiful wonderful daughter who was 9 years old when I had her baby sister. And even though she has had her own heath battles with bipolar disorder, she has been willingly taken care of her siblings. Making them dinner, giving them baths, and getting them put to bed. And to take care of her sick mom who can't get out of bed. With out Krista's,and Jose's help and the support and prayers from family and friends, I don't know where I would be today. .
I think I am completely going to be a emotional basket case for several weeks.So if you happen to see me and I just break down in tears you know why. The more information I find out, the more my heart sinks. Now more than ever I want this THING out of me. I'm almost half tempted to pull the damn thing out myself. But I won't. For two reasons, the first being that I am going to get a silicone poisoning test done before it is removed. I want to be armed with the truth to make Bayer listen to all of our voices. The second being that I am scared. I have also read the horror stories of the iud needing to be surgically removed. I pray to God that I get spared from further attaches of this evil device.
I really could use some encouraging words and scripture's about now. Please post anything positive that you might be able to tell me. I'm so sorry that their are so many of us suffering this way.
Please read this article and spread the truth to family and friends. http://www.virginiahopkinstestkits.com/mirenareport.html
Do you know what it's like to write letter's to your loved ones because you think your dying, and hope that they find where you have hidden them once your gone? Or to have many day's where you physically couldn't get out of bed. Where you couldn't care for your children? Not being able to help them get ready, brush there hair, feed them, or be the loving nurturing mother God made you to be? If I was your wife, sister, daughter and you had to stand by watching my body slowly shut down, then would you take this thing off the market! These are some of my questions I would like to ask the makers of mirena.
I will forever carry the guilt of not being a good mom around with me for the rest of my life. There are no words I can say to my kids to make up for lost time, and that I'm so sorry they had to grow up way to early. Luckily I have a beautiful wonderful daughter who was 9 years old when I had her baby sister. And even though she has had her own heath battles with bipolar disorder, she has been willingly taken care of her siblings. Making them dinner, giving them baths, and getting them put to bed. And to take care of her sick mom who can't get out of bed. With out Krista's,and Jose's help and the support and prayers from family and friends, I don't know where I would be today. .
I think I am completely going to be a emotional basket case for several weeks.So if you happen to see me and I just break down in tears you know why. The more information I find out, the more my heart sinks. Now more than ever I want this THING out of me. I'm almost half tempted to pull the damn thing out myself. But I won't. For two reasons, the first being that I am going to get a silicone poisoning test done before it is removed. I want to be armed with the truth to make Bayer listen to all of our voices. The second being that I am scared. I have also read the horror stories of the iud needing to be surgically removed. I pray to God that I get spared from further attaches of this evil device.
I really could use some encouraging words and scripture's about now. Please post anything positive that you might be able to tell me. I'm so sorry that their are so many of us suffering this way.
Please read this article and spread the truth to family and friends. http://www.virginiahopkinstestkits.com/mirenareport.html
Monday, December 3, 2012
Pain doctor visit
I saw my pain doctor today, and printed some research information about what silicon can cause in your body. Almost all my symptoms are on there, so I least felt like I was armed with some evidence. She was amazed, never heard of it before. Told me she will remember my experience from now on and helpfully be able to help other woman. Also told me that when I get it removed and start feeling better to send a letter to at least the neurologist I have been to. She said they may have the information already and don't want to admit it. That way they at least know one of their patients have been through hell with this mirena and use that information when treating patients who may be going through the same thing. I'm still floored with all this research I have been reading. I feel so stupid that I never connected that my symptoms started after having Isaiah (which is as far back as I remember having them) and when I got my first mirena.I have my appointment to have it removed on Thursday December 13. I feel like that is years away! I am extremely grateful for God planting that little seed in my head to look into side effects from the mirena. I'm sure over the years he has been there whispering thoughts to me, but I didn't listen. From now on God I am all ears! Our God is GREAT. He grace and mercy never ceases to amaze me.
Sunday, December 2, 2012
Other symptoms
I already remember two symptom's I have left out. I have major fatigue, to the point that I have almost fallen asleep while drive. It's like my eyes are extremely heavy and I can't keep them open. It is only by the Grace of God that I have not injured myself, my children or others while having this fatigue and driving. Even after telling doctors about this symptom, nothing was done. Also I have felt on and off over several years the "fluttering" feeling you have early on in pregnancy, I have bought countess amounts of at home pregnancy tests and even had a blood test done several months ago with all negative results. Both of these symptoms are also recorded from other mirena suffers, just like all of my other ones. Praise God that I finally have a name to what is wrong and can finally fight it with the best solutions.
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